Energy Envelope State
Deficit (Risk of Crash)
Expenditure exceeds current baseline capacity
Active Regimens
3 Medications/Protocols
Carefully staggered introductions
Recovery Guide Chapters
4 Structured Sections
Educational patient workbook outline
Trajectory & Time Horizon
38 Months
95% bedridden / rebuilding
1. Energy Envelope Calculator
Direct Manipulation
Primary Symptom Overlap
MCAS flares, Orthostatic Intolerance (OI), Crushing ME/CFS fatigue
Pacing Margin
-2 units
10 units
Daily ceiling before triggering Post-Exertional Malaise (PEM)
12 units
Combined load from self-care, screen-time, upright posture, and work
0 units
Capacity Target
Over-exertion Zone
Clinical Guidance & Pacing Strategy
Reduce daily exertion by 20% and log symptom triggers
Active Medical Regimen
Single-variable introductionCarefully introduce one therapy at a time every 1–2 months to evaluate tolerance.
2. Patient Recovery Guide & Workbook
Educational ChaptersSynthesize lived chronic illness insights into structured chapters and actionable workbook guides for patients, caregivers, and medical navigation.
Core Pacing Principles
- Protect Your Progress: Returning capacity can tempt aggressive overexertion. Always maintain a 15–20% energy buffer.
- Separate Validation from Inaction: Acknowledge severe limitations without abandoning empirical exploration and incremental pacing.
- Micro-titration: Begin low (e.g., 0.125mg semaglutide or <0.25mg LDA) to prevent intense MCAS neuro-reactivity.
Protocol saved.